AGORA | News
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Report on the Patient Advocacy and Safety Conference

15 November 2016, European Parliament – Hotel Silken Berlaymont, Belgium The Patient Advocacy and Safety Conference was organised by the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) and the Global Alliance for Patient Access (GAfPA). The main aim of this conference was to support...

Agora participated to 9th Annual IEEPO in Madrid

Agora participated with its Chair Mrs Souzi Makri at the 9th Annual International Experience Exchange for Patient Organisations, which took place in Madrid from 15 to 16 March 2017. During the meeting more than 300 participants from 56 countries from all over the world had the opportunity...

5th Annual Pharmacovigilance Forum in Berlin

On 3 March 2017, Agora participated at the 5th Annual Pharmacovigilance Forum in Berlin which offered a great opportunity to become aware of the most important updates of the industry. Agora's Chair, Ms Souzi Makri, made a presentation based on patient's perspective on “Why pharmacovigilance...

Participation to CPWP meeting in London

On the 30th of November 2016, took place in London the EMA Human Scientific Committees’ Working Party with Patients’ and Consumers’ Organisations (PCWP) meeting with all eligible organisations where Agora represented by its Chair, Mrs Souzi Makri.  This was the final meeting for 2016 which brought together...

Marcus Evans’ 14th annual Evolution Summit in Europe

Agora was represented by its Chair Mrs Souzi Makri at the Marcus Evans’ 14th annual Evolution Summit in Europe, which took place in Berlin from 9 to 11 November 2016. The summit offered to clinical research leaders and global CROs an intimate environment for focused discussion on key...

Participation to Drug Safety Congress Europe in Munich

Mrs Souzi Makri, the Chair of Agora, participated at the Drug Safety Congress Europe which took place in Munich from 14 to 15 September 2016 and it was organized by the Health Network Communications Ltd.  The conference covered an area of various topics like the...

Agora’s winter workshop in Budapest

Agora in cooperation with GAfPA organized a very interesting workshop on “Biologics and Biosimilars Patient Access and Self-Management”, from 13 to 14 January 2017, in Budapest. The main aim of this workshop was to address two of the most popular and trending subjects related to RMDs:...

Interview of Agora’s Chair Souzi Makri to EUPATI

Mrs Souzi Makri , Chair of Agora, gives an interview to EUPATI, where she refers, among others, to the challenges and barriers that she faced within her patient advocacy work as well as the changes that she would like to see in the future of...

Report on the 2nd meeting of Young PARE

21-23 October 2016, Retie, Belgium Young PARE is the youth group of the PARE standing committee of EULAR. It represents young people with RMDs from the EULAR members and its vision is to improve the quality of life of young people with rheumatic and musculoskeletal diseases...