Governance \ Bylaws

Agora by Laws

STATUTE OF THE FEDERATION OF ASSOCIATIONS UNDER THE NAME «AGORA – FEDERATION OF ASSOCΙATIONS FOR PATIENTS WITH RHEUMATIC AND MUSCULOSKELETAL DISEASES OF SOUTHERN EUROPE»

 

ARTICLE 1: ESTABLISHMENT – NAME – HEAD OFFICE

A Federation of Associations is founded under the name “AGORA – FEDERATION OF PATIENTS’ ASSOCIATIONS WITH RHEUMATIC AND MUSCULOSKELETAL DISEASES OF SOUTHERN EUROPE” and the distinctive title “AGORA” based in Athens, which consists of primary organizations, non-profit associations or associations of patients suffering from rheumatic and musculoskeletal diseases (R.M.D.).

 

ARTICLE 2: PURPOSE – ACTIVITIES

The Federation has the following objectives:

  1. The promotion, rallying and coordination of common actions for the health and support of people with Rheumatic and Musculoskeletal diseases.

  2. The reduction and alleviation of the effects for sufferers of Rheumatic and Musculoskeletal diseases and their familiars in terms of personal, professional and social level.

  3. The support of the rights of people with Rheumatic and Musculoskeletal diseases regarding the education, care of sufferers, treatment, rehabilitation, prevention and autonomy in everyday life and their promotion under the umbrella of the protection of human rights.

  4. The representation of the interests of the entire community of Rheumatic and Musculoskeletal diseases at European and Νational level.

  5. The collection and provision of information on all aspects of Rheumatic and Musculoskeletal diseases, in the medical and social field.

  6. The encouragement of innovation and excellence in education and research with the aim of improving the treatment and care of sufferers of Rheumatic and Musculoskeletal Diseases.

  7. The encouragement and undertaking of research programs including research and clinical trials on Rheumatic and Musculoskeletal diseases and the dissemination of the results of any research.

  8. It is expressly excluded from the objectives of the Federation to pursue in any way directly or indirectly politically motivated objectives or to cooperate with other associations of persons pursuing political objectives.

 

ARTICLE 3: MEANS OF ACHIEVING OBJECTIVES

To carry out its objectives, the Federation will use any appropriate means such as:

  1. The coordination of the action of its members for the general demands it claims.

  2. The contribution and encouragement of the creation, establishment and development of similar primary organizations for people with Rheumatic and Musculoskeletal diseases in Southern Europe.

  3. The development of any kind of informative, educational and recreational activity such as the organization and coordination of lectures, workshops, discussions, seminars, etc.

  4. Participation in national or international conferences, seminars, lectures, round tables and any other relevant or related event, conducted by scientific institutions, or any other patient body, national or international.

  5. Communication and cooperation with similar social and medical bodies with national and international competent services and organizations.

  6. The undertaking of interventions, representations or démarches to the competent international or national bodies, scientific associations, universities, social and private bodies, as well as any Greek, foreign or international body, which has the ability or the will to contribute to the achievement of the Federation’s objectives.

  7. The preparation and support for the development of research programs.

  8. The collaboration with sponsors from the field of private initiative for social researches, information campaigns, funding, donations, etc.

  9. The establishment of working groups and committees, as well as the assignment of work to specialists to achieve individual objectives.

10. The appeal or representation and information in any kind of legislative or judicial bodies (Courts, committees, Parliament, etc.) at international or national level to achieve the objectives.

 

ARTICLE 4: MEMBERS OF THE FEDERATION

  1. Full Members of the Federation become non-profit and non-governmental organizations such as Unions, Alliances or Associations of patients with rheumatic and musculoskeletal diseases, which have been legally established and recognized in the states where they are based, pursue similar or fully harmonized purposes with those of the Federation, and are based in countries of Southern Europe (such as Bulgaria, France, Greece, Israel, Spain, Croatia, Cyprus, Malta, Montenegro, Portugal, Romania, Serbia).

  2.a) Associate members of the Federation become non-profit and non-governmental organizations such as Unions, Alliances or Associations of patients with rheumatic and musculoskeletal diseases, which have been legally established and recognized in states that are based and serve purposes similar to those of the Federation based outside the countries of Southern Europe, for a period of three (3) years, which may be renewed by decision of the Board of Directors.

    b) The associate members do not have the right to vote and stand for election or the right to vote in the General Assembly and do not participate in the Administration.

    c) The associate members have access to all information in relation to the activity of the Federation, participate in the conferences and the work of the Federation, benefit from the network of the federation and participate in the work of the General Assembly (without participating in the decision-making process), in accordance with the internal regulation, approved by the General Assembly. By decisions of the Board of Directors, the associate members may be present at the organs of the Federation with specific objects of intervention.

  3. Rights and obligations of full members:

    a) Full members of the Federation are entitled to:

          i. To take part with their legal representatives in the General Assembly of the Federation.

          ii. To express their views freely, to control and criticize the work of the Governing Council of the Federation.

          iii. To take note of the minutes and all books, data and documents kept in the Federation, upon their request to its Board of Directors.

    b) All members of the federation may request their moral, material and legal support from the Federation for the promotion of their purposes.

    c) The members of the Federation are obliged to:

          a) To pay their subscriptions on time, the amount of which is determined by the Board of Directors of the Federation and may vary by category of members.

          b) To respect and apply the Statute of the Federation and the internal regulations of the Federation, to support the decisions of its bodies, when they do not affect their independence.

          c) To submit within one (1) month after the conduct of their elections an official copy of the minutes of the Election Committee for the election and nomination of their bodies.

          d) To inform the Board of Directors in written form at regular intervals about their problems, as well as the appropriate actions they have taken to resolve them.

          e) To assist in the fulfillment of the objectives of the Federation, not to turn against them and not to prevent the execution of the decisions of the Board of Directors of the Federation.

          f) To appoint a person as “Liaison”, who will act as the main person of contact between them and the Federation. This person will contribute to the continuous communication between the Federation and each member regarding the achievement of the purposes and objectives of the Federation. The contact person, depending on the type of information or request, will share the message with the relevant persons in the member organization as required.

 

 

  4. Registration of Members of the Federation:

    1. For the registration of a member of the Federation, the following are required:

          a) Written request of the candidate member or the competent body to the Board of Directors of the Federation, accompanied by a copy of the minutes of the General Assembly, from which it appears that the candidate member, after having been informed of the statute of the Federation, accepts it unreservedly and on this basis submits an application for his entry into the federation.

          b) An official copy of the Statute of the candidate member, of any amendments thereto and of the recognition of its establishment by the competent authorities of its head office, must be submitted.

          c) A document must be presented proving the election of the administrative bodies of the candidate member, as well as the responsibilities of each of the members of the administration, such as minutes of the Election Committee for the election of the Administrative Bodies and minutes of the establishment of the Board of Directors into a body or any equivalent document.

          d) The candidate member must have participated in previous actions of the federation or its members and be active at national or regional level.

    2. The Board of Directors of the Federation is obliged to include in the daily agenda the examination of the application of the candidate member at its first meeting, in which case it approves or rejects it with justification.

     3. Any decision taken by the Board of Directors shall be notified in written form to the candidate member within thirty (30) days of its issuance.

    4. The Board of Directors, if, for any reason, doubts the non-profit-making or non-independent political action of the candidate member, may request the General Meeting to decide whether to accept the application or not. In particular, the suspicion or finding that the candidate member is granting excessive privileges or distributing significant sums of money to its members or representatives, is a reason for referring the matter to the General Assembly.

    5. Member’s Withdrawal:

The members of the Federation may freely withdraw from the Federation with a written statement to the General Secretary of the Federation. The deletion of the member from the Federation takes place within three (3) months from the receipt of the written statement.